I can go for a jog, I can swim, but the problem is: I have no spontaneous breathing! I have to take every breath consciously. And if I am not diagnosed and treated, I will die!
It started when I broke my rib in 2011, but got worse and worse. It must be a very rare disease, for I have found no info on it!
My lack of breath gives me only 2-3 hours of sleep at night, and this lack of sleep ruins my ability to work, gives me anxiety from sleep-deprivation, and might possibly be fatal.
The severe sleep deprivation caused by close to zero sponteneous breathing also makes me continously anxious so I have to use pills to handle my anxiety! It has gotten so bad I sometimes feel like I`m loosing my mind, and I dare therefore not travel by airplane, move to another city, and can hardly even get out of my home - until my condition is treated!
Why would I, an IQ of 123 (had better before) , author of 9 books, a Reichian Scientist (www.tensororgonite.com) suffer and lie for 7 years?
All the symptoms are there: The lack of sleep due to close to zero spontaneous breathing gives me anxiety which the doctor gives me pills for.
Why would I, a hard working, social party lion, lie and stay in bed - never leaving home because of anxiety??? I who used to travel, freedive, meet girls, visit pubs, and work in politics?
Most tend to say: ¨But you are breathing now¨. Yes, but I have to breathe consciously, it`s no automatic thing...!!!
My mother says: ¨Well you`re still alive!¨ And that`s all the help they gave me for 7 years.
And the doctors say: ¨Your x-ray, inhaling and exhaling lung volume is normal.¨ To that I can only say: ¨But I have no spontaneous breathing. I have to take every breath by force!¨ And it`s worst when I lie down, as the weight of my belly and chest pushing towards the bed further reduce the my the little spontaneous breath I have left.
I have a CPAP breathing apparatus, but even at max strength (20) , it isn`t enough to inflate my lungs. I am very serious about my need for a full lung transplant, and if there was another way, I would not have been so serious about it, ruining my reputation with a shameful condition.
Will you help me?
Others say it`s a psychosomatic disorder, that is, my lack of spontaneous breath is stress-realted, in other words: Partially mental and partially physical! They wish me the best, but don`t know better, since the x-rays, and clinical tests show I have normal lungs. But that might have changed since 2017, and what about my diaphragm, and the stress caused to my rib-cage muscles after I broke my rib? '
Why would I lie? I can`t lie, and must tell you that I have close to zero spontaneous breathing! I am young, healthy, my disease must be screened and deserve a lung transplant!
I also have what they call mild dysphagia, but it has lately gotten much worse, although, I live with it quite well.
I used to be a smoker, but the condition got worse on a vacation to Hawaii, where I freedived extensively over 3 months, inhaling a lot of volcanic smog. I then quit smoking in 2013, but the condition got gradually worse until 2019, when I had close to zero spontaneous breathing, and mostly survive from exercizing my lungs, closing myself in, and resting much of the day due to lack of deep sleep and spontaneous breathing.
This is a terrible way to die, and who will operate my business or tend to the garden and chickens? Who will make the pop-rock albums I`ve dreamt of making my entire life???
I am a great vocalist. Will you help me get diagnosed, taken seriously by the doctors so I can get a full lung transplant? ¨Will you help me rise from the dead???¨
I come from a strong family, am in high spirits, an optimist, and if I get a lung transplant, I certainly have 40 good years of work ahead of me.
But in general, if I do not receive a full lung-transplant, I will die, not that I have any plans of taking suicide, but I certainly won`t last another 3 years, I say so, since I have to address this seriously.
The least they could do is to take me to a sleep-clinic to analyse my sleeping patterns! But no such thing has been done as of yet. The sleep deprivation has gotten so bad I can barely leave home due to anxiety! And there`s only one bed, my home bed, that I feel comfy enough to sleep in! I also do not have a drivers lisence, but am working on it.
Yours sincerely, a Norwegian patriot of love.